The endocrinologists seemed to want to get a better handle on what the stones are made of. Usually when calcium is high, another hormone called the parathyroid hormone will also be abnormal. In my case, the doctor called it "inappropriately normal". This confused them and opens up other possibilities for why my calcium is high. None of which are that good, and none of which I really want to get into right now mainly because it's kind of scary.
The plan for now is to redo the calcium, parathyroid and all of those tests. I'm getting more kidney function tests and some other hormone tests. Then we can make a decision as to whether imaging needs to be done of the parathyroid gland to check for masses and if the doctors need to actually retrieve the stones from my kidneys to verify the stone's composition. Just hearing how the stones would be retrieved made me cringe.
I also saw my endometriosis specialist today and I am reducing my Aygestin. He basically said anytime my prednisone doses are changed around it will interact with my Aygestin and cause the problems I have been having. But since my lungs like to swell up so much, getting off the prednisone is proving kind of difficult.
I'm pretty discouraged. I just want my body to work. There were other alternatives mentioned that are too hard to really think about right now, and my mind is spinning a little bit. It just seems like every time something starts to do right, I fall back into another medical quagmire. And I am getting very sick of it.