Friday, December 24, 2010
Tuesday, December 21, 2010
Sunday, December 19, 2010
Saturday, December 4, 2010
Saturday, November 13, 2010
Monday, November 1, 2010
Tuesday, October 26, 2010
Monday, October 11, 2010
Sunday, October 10, 2010
Wednesday, October 6, 2010
Saturday, September 25, 2010
Tuesday, September 21, 2010
Thursday, September 16, 2010
Thursday, September 9, 2010
Saturday, September 4, 2010
Monday, August 30, 2010
Wednesday, August 25, 2010
Monday, August 23, 2010
Thursday, August 19, 2010
Wednesday, August 18, 2010
Monday, August 16, 2010
Sunday, August 15, 2010
Wednesday, August 11, 2010
When endometrial tissue is located elsewhere in your body, it continues to act as it normally would during a menstrual cycle: It thickens, breaks down and bleeds each month. Because there's nowhere for the blood from this displaced tissue to exit your body, it becomes trapped, and surrounding tissue can become irritated.
Trapped blood may lead to cysts, scar tissue and adhesions — abnormal tissue that binds organs together. This process can cause pelvic pain, especially during your period. Endometriosis also can cause fertility problems.
I was 10 years old when I got my first period and started having problems when I was 11. I distinctly remember one day trying to walk to my grandmother's house after school and having to lay down in the middle of the street because I was in so much pain. I also bled very heavily for often longer than a week. Eventually the pain became chronic. I was 2004, just before I turned 16, that I had my first laparoscopy. They found endometriosis on the lower part of my colon and started me on injections of a medicine called Lupron Depot. About two years later I had another laparoscopy.
I no longer have chronic pain from my endometriosis and I do not take the Lupron anymore. I am on a medicine called Aygestin and it makes it so I do not get periods.
There is some debate as to the cause and nature of endometriosis. There seems to be some consensus, however, that it is an autoimmune disease. I even found this link here that links endometriosis and the lupus anticoagulant antibody and the antinuclear antibodies. As far as I know I do not have the anticoagulant antibody, but I do know that I have the antinuclear antibodies.
It is really interesting to me how once you have one autoimmune disease it puts you at risk for more. If I pursue a career in medicine, which seems more and more likely, this is something I hope to study further. I will post later all about how indecisive I am about my future career.
Sunday, August 8, 2010
Friday, August 6, 2010
Thursday, August 5, 2010
Tuesday, August 3, 2010
Wednesday, July 21, 2010
Now, for the bad: I have gone on the dreaded prednisone. This swelling around my lungs is just not going down and its very painful and annoying. I knew it was going to happen when I went in there, but I am still extremely disappointed.
That's all for now. I'm still doing this ridiculous class so I need to continue my work on that especially since I will now have an extra thing to do during the day!
Friday, July 16, 2010
I spent yesterday evening at the hospital. This was my first time being sent there for lupus-related reasons since my diagnosis. I was having chest pain when I breathed that just wouldn't go away so my rheumatologist sent me over. The diagnosis, as I thought, was pleurisy. For a few tense moments, after my EKG and some heart imaging, the thought was that I had a pericardial effusion. But that was not the case and I was out of there in about 5 hours.
The chest pain is still there but I can live with it until my appointment on Tuesday. There are some things related to my heart that I need to talk to the doctor about, but it is safe to say that I will be OK. I just cant go to the gym which actually bums me out a lot.
This was my first ER visit in a year, which pre-diagnosis was unheard of. I also haven't been hospitalized since October 2008, which is wonderful. I was averaging every 4-6 weeks being seen in the ER or being hospitalized in my high school days.
I'm glad everything is working out and I hope everyone has a good weekend!
Wednesday, July 14, 2010
Sunday, July 11, 2010
Now this injury, despite the disconcerting amount of blood, was not very serious. No stitches were needed and there isn't even really a scar now. But seeing my dad hurt was so disarming for me; I can't imagine what things must be like for him. He watched his wife die from an autoimmune disease and it must be horrible to watch his only child suffer from one.
My dad and I are very close and I love him with all my heart, and I know he feels the same about me. Watching him with just a cut on his hand was hard for me, imagine watching your daughter go through countless hospitalizations, surgeries and losing feeling in her legs...twice.
I hope to keep my dad around for a very long time.
Tuesday, July 6, 2010
I am back home now with the beginning of a migraine. I am hoping it will work itself out if I drink some water because I don't want to take my migraine medicine because it makes me sleepy and I want to go to the gym later this evening.
Luckily, I have only had my sun rash a little bit on the 4th of July. It was minimal and it didn't even itch/hurt. I just noticed it when I looked down at my legs.
Anyway, I am so tired and so hot right now and the heat from my computer is annoying me. Hopefully I will be the proud owner of a new Macbook Pro by the end of the week because our financial aid awards are supposed to come out in the next few days.
To everyone in the Northeast, do your best to stay cool. And specifically for the lupies (but for everyone else as well), do your best to remember sunscreen and make sure to take rests when you need them.
Friday, July 2, 2010
All this will change on the 4th when we get a week of 90+ weather. Oh. joy. And to top it all off the humidity is supposed to ramp up as well. I really, really have trouble when it gets like that outside. I swell and get rashes and fevers and feel miserable. On the 4th my dad and I are going to his friend's lake house. We go out on the boat and have a cookout and talk. Later, when the sun goes down, each house on the lake puts on a firecracker show, with each house trying to outdo the others. I always think the house we are at does the best, but I might be biased.
The 90 degree weather is similar to what we had in NYC when I went last weekend. I stayed two nights with my grandma who lives in Brooklyn and one night with my friend who is subletting an apartment in Manhattan for the summer. It was so much fun, even when I got ugly itchy/painful blisters on my legs because of the sun. And even when my knees and fingers swelled up and I almost passed out in a boutique. Seriously, I had such a good time. I can't wait to move to NYC (maybe one day).
So, for the next few days I am really, really going to have to be diligent with my sunscreen and listening to my body. I kind of overdid it in NYC, but luckily things didn't get too bad.
In other health news, I have to go see an endocrinologist because I keep forming stones in my kidneys and then of course my gall bladder which I had out in January, My calcium levels tend to be very high even though my Vitamin D tends to be low and I am osteopenic. So I need to sort all that out.
I hope everyone enjoys that 4th of July and I will get my last post updated soon!
Thursday, July 1, 2010
First, I would really like to thank SR at Grad Student With Lupus for nominating me for the One Lovely Blog Award! In keeping with the acceptance criteria, I will now nominate 8 other blogs (in no particular order) that I think are definitely worthy of your time. Once I can come up with more (which I know there are, but I am at work...) I will update this post.
1. Flow at The Life of a 20-Something With Lupus. This was the first lupus blog I started reading. Her stories are always inspiring and her ability to keep humor and hope in the face of such challenges is awe inspiring. Please check her out if you have not already.
2. Manic Mom because she is hilarious and deals with lupus on top of raising three kids. She is an inspiration for the type of mother I want to be one day.
3. KirBir at Not Standing Still's Disease. I love reading blogs by other college students and their experiences with chronic illness. Definitely check out this blog if you are interested in this like me!
4. Sara at Despite Lupus. She has written a book called Despite Lupus that I unfortunately have not had a chance to read. It is first on my reading list though when I get some income again!
5. Hanah at Capturing JRA through Horses. She is another young adult dealing with chronic illness, so her perspective is always of interest to me.
6. Laurie at A Chronic Dose. Everytime I see an update from her I get ridiculously excited.
7. Rheuma Girl at There's Always Room for Improvement. I love her humor and the words used in the UK that we don't always hear in the States.
8. Skye at Stuck at 21 with RA; Coping with It. Another perspective from a young adult.
In other news, some stuff has been going on with me health wise and I want to talk about my trip to NYC. That will come in a future post as I should probably get back to work.
Saturday, June 19, 2010
I also woke up with a migraine today which has not helped my mood. I had to take my migraine medicine twice during the night and then this morning 600 mg of ibuprofen (because I am not taking the Mobic right now because of my stomach).
On Tuesday I meet with her again to talk about my lupus and the results of my kidney ultrasound. I got a letter from her today that said I have multiple stones in them. This does not really surprise me because I have a history of kidney stones.
The weather is gorgeous here (but hot) and I have not been able to enjoy it because of my stomach. I am hoping things will change around quickly. If not then I will have to stop the Plaquenil.
Monday, June 14, 2010
I have another congenital bone problem with my tibias, or the shin bones. They both are bowed to the side which causes my feet to turn out like a ballerina's. Unfortunately this does cause some problems for me and I think it contributes greatly to why the joints in my legs hurt a lot more than the joints in other parts of my body. Of course when other joints want to act up (like my right shoulder now) they really get going.
Also I have the congenital cataracts to deal with which have never really been a problem before this past year and a half. It seems like I was born with some interesting features to my body. There are a couple reasons I think this happened.
1. My mother had an autoimmune disease called sarcoidosis while she was pregnant with me. Her case was very severe and she was on very high doses of prednisone. Of course prednisone is deemed safe in pregnancy, but it has been speculated that the prednisone was the cause of my cataracts. Unfortunately my mother lost her battle with sarcoidosis when I was 5 years old, and seeing the effects it had on her make me resist prednisone even more.
2. I was born quite early. 2 months in fact. The details are a bit fuzzy as to the circumstances surrounding this but most of what I gathered involves "a lot of blood" and me being "impatient". Whatever the reason, I was preemie. I was pretty much OK once I came out and spent only a little bit of time in the NICU before I came home.
Whatever the cause of these issues, I may never know. I just have to accept my unique body and the lupus that comes along with it!
Sunday, June 13, 2010
I went up to school to see the eye doctor on Friday. Since I started taking the Plaquenil, I have to go back and get a visual field test in about a month. Then we will also talk about having the cataracts removed which I really want. The doctor wants me to try getting new glasses with a special coating on them first.
Today I went to the gym for the first time since I had my kidney stones. It passed last night and I am not in pain from them now so I thought I could try going back again.
I am still jobless but this news about the apartment next year has lifted my spirits considerably. My online class is going well, I just have to find the motivation to do the work. I have to watch a 2 hour documentary tonight and I have a mini-paper due on an article tomorrow.
Hope everyone is doing well!
Wednesday, June 9, 2010
My online class started yesterday and I have done none of the reading yet. I have also not gotten back into the apartments for next semester, found a job, and my financial situation is still pretty awful. All around I'm just not in the best mood.
That's it for now. I have to go to school n Friday to see the eye doctor again so I will post again after that.
Thursday, June 3, 2010
I also mentioned my problems with my new rheumatologist. She prescribed Plaquenil, but my insurance wants a prior authorization. It has been over a week and the authorization has still not gone through. While I am not thrilled to try Plaquenil again because of the effects it had previously on my stomach, I do think waiting over a week is a bit ridiculous.
I guess my ideal doctor would be caring, a good listener, and available. My rheumatologist at school fits the bill, but she is the only one (out of many, many doctors I have had) who really does. In thinking about going into health care, I read many different articles and blogs written by and about health care professionals. I understand that they are often overworked and have a very demanding schedules, but what about our needs as patients? I often feel like a burden to my doctors and I have delayed or just plain not sought medical attention when I thought I needed it because of this.
This problem is bigger than just certain doctors. It is part of the problems facing our heath care system in general. However, there are certain things that I expect from my doctors and fins unacceptable and other things that I can give some leeway with.
Anyone else have any thoughts?
Friday, May 28, 2010
I gave my blood to some blood bank for lupus research while I was there. This rheumatologist is affiliated and located in a big research hospital so I have opportunities to participate in research. I also consented to be contacted by the people running a study on Vitamin D and lupus. I take a weekly megadose of Vit. D because my levels tend to be pretty low.
My summer classes start June 8 and are available for preview on June 1. For some reason I am looking forward to starting them although I know my tune with change once they actually do start.
I have been going to the gym regularly since I have been home. I want to lose 10 more lbs before school starts again. I want to go again tonight but I have had a pretty bad day and I am very aggravated so I just want to go to my favorite ice cream stand and watch the Celtics WIN.
That's all for now. Enjoy the holiday weekend!
Wednesday, May 19, 2010
I wanted to go to one of my really good friend's fashion show today, but now I am unsure if I will make it. Even though the Cellcept has made me feel really good, I still understand my limits with lupus. And because Cellcept is an immunosupressant, I really have to be careful.
My plan for now is to stay in bed and watch movies and drink tea and soup. It is a rainy, chilly day here so it is especially conducive to not doing much.
Also, I made Dean's List!
Tuesday, May 18, 2010
I am still liking the CellCept, but unfortunately I got my blood test results back a couple days ago and one of my liver enzymes was increased and my C3 complement was high, which I gather means acute inflammation of some sort. Hopefully when I go to The Lupus Center next Tuesday they don't tell me that I have to stop it.
However, while it is still working very well, I have been a little more achy over the past few days, even when taking pain medications constantly. But it is nothing I cannot manage and my evergy levels have been really good.
I am still waiting to get my grades back. I think I got 5 A- and a C+ in Spanish. That class was horrible for me. I took French in high school and unfortunately, that's what I spoke in Spanish class. It was not so bad last semester, so I don't know why I couldn't get the hang of it this semester. In any case, I hope that the C+ wont keep me off the Dean's List for this semester because I have all As for my other five classes.
As I have said before, I am a little crazy about my grades.
Hope everyone has a good week!
Saturday, May 8, 2010
Is this what it feels like to have some energy? Doing even half of these things would have wiped me out just a few weeks ago. I still don't want to jinx the CellCept, but maybe, possibly, could it be that this is why I am feeling so much better? I am reluctant to say anything because things change so dramatically with me so quickly, but hopefully this is something that will last.
Monday, May 3, 2010
Tomorrow is the last day of classes. A week ago my Psych/Lit class ended. I finished my Writing as Communication class today when I turned in my case study and tomorrow I have a group presentation for New Media and a test in Plagues. I only have two scheduled finals for Spanish and Media Programming. The end is in sight.
I have also started the medication Amitriptiline for my migraines. I gave it two days last semester because I didn't like the effect of weight gain it can have. I went to my doctor on Friday because of an increase in my migraines and he suggested I give it another try. He assured me there would be no weight gain on the dosage he would put me on. So I am going to try it again because it does help me sleep better as well. My doctor did not want me to go up on Verapamil because my pulse is very slow and my blood pressure is generally borderline low.
Well that's my life/school/medical update. Enjoy the rest of the week!
Friday, April 30, 2010
I do not like that a lot of my decisions for my future are based on my health, or, more specifically, my health insurance. There are so many things that I want to do that I feel are being limited because the toll on my body would be too great, or it is kind of off the beaten path and I may not get insurance.
I bet this is something a lot of chronically ill young adults experience, and something that I would definitely want to discuss in the support group I want to start. It is something that has been weighing pretty heavily in my mind.
It is going to be a wonderful weekend here in MA. I am going to see my dad tomorrow and I have my last 8-4 shift on Sunday! I hope everyone else has a great weekend.
Tuesday, April 27, 2010
I know several people doing Teach for America and one told me that the program likes for successful applicants to have leadership experience. So this got me thinking. One thing I could think of is starting a support group for students on campus with chronic illness. I do not think any such group exists and it is important for students to be able to reach out to one another. I know that I am frequently overwhelmed by the prospect of having lupus for the rest of my life. I am just beginning to come into my own, develop who I want to be. Unfortunately chronic illness is a factor.
This has to be the same for other student whether they have lupus or something else. Being our age and dealing with all the uncertainties that illness brings is difficult. I plan to bring it up with my primary care physician on Friday when I have an appointment. He can probably tell me if something on campus exists, and if not, how to go about setting it up.
I think this could be a good resource on campus AND provide me with the leadership experience I need for possibly applying to Teach for America (or grad school, or a job....)
I plan to write a post later about my decision making for staying an extra year in school and how lupus is factoring into my decision for after school.
Have a fantastic week!
Friday, April 23, 2010
1. Besides having lupus, I don't like the feeling of being drunk at all. I don't get it. I only like to drink to the point where I am "friendly". Whether due to my medications or my body chemistry or whatever else, it does not take much to get me "friendly".
2. Then there is the lupus itself. Just the energy of dressing up and looking cute can make me sleepy and achy. I really am no fun when I get like this and my friends notice it right away and it brings them down too. I hate not being able to do these things, and share in these experiences, but I really am miserable by about two hours in.
3. The recuperation period for me takes a long time, and I simply don't have much time. Between my six classes and two jobs, I don't really have the time to spend trying to recover. It's much easier for me to do things that I know won't take a lot out of me.
The reason I am writing this post is because I am currently sitting at home, 100 miles away from school about to go to bed at 10:45, and the rest of my school is partying it up. It's basically our spring weekend and there are parties and dances all around campus. I was so exhausted and out of it I decided not to drive home and spend my money (oh, my precious money) to skip work today and take the bus home.
But after all this, I still have to ask the question "What is normal?" I have to accept that this is what it is for me. College students come in all varieties, so fitting some media induced or stereotypical mold is not realistic. Maybe one day I will actually come to accept this.
Thursday, April 22, 2010
I was about 14 years old when I was put on the medication Depakote for various reasons. At that time, I was a stick. I weighed about 125 pounds and was about 5'4. The time that I got put on the Depakote was not a good one: I was going through a very hard time, had just been hospitalized and basically felt like my world was falling apart. The reasons I went on the Depakote (and various other medicines) are over with. It's part of a time in my life I do not want to revisit.
Anyway, I didn't know what they were giving me, but I took it anyway. I got out of the hospital about a week later, picked up my prescription, and read the side effects. "May cause weight gain" was a prominent one. I scoffed at that. I was always a tiny little thing and I could not imagine a medicine changing that. I was completely wrong. Six months later, I had gained 55 pounds, and I was not done.
The weight did some crazy things to my body. I tested positive for Type 2 diabetes twice, but luckily the sugar always came down. I did get the diagnosis of insulin resistance however and I was really scared because I did not want diabetes, but I also did not know how to lose weight on the medication.
In addition to diabetes, my heart and blood pressure started to have a hard time with the weight. I wound up in the emergency room more than a few times because my blood pressure would get so high that I would become dizzy or I would be having heart palpitations. The doctors found "changes" on my EKG, and they even once had to do a full workup for a heart attack. I was probably about 16 years old.
I'm not quite sure what the highest weight I reached was. Somewhere between 200-210 pounds would be my best guess. My skin was covered in stretch marks and my self-esteem had plummeted. I had considered myself a good looking girl but I could no longer stand to look at myself in the mirror anymore. My body had changed so quickly and I was miserable. I could no longer walk very far or wear my clothes.
In my second year of college I decided enough was enough. This weight needed to come off and the only way I knew how to begin this was by stopping the Depakote. So I did - cold turkey (which is definitely not advisable, but I did anyway). Things went well until the migraine hit. I was in migraine hell and ended up spending about five days in the hospital with a steroid drip to break it (one of the first clues to my lupus). The theory is that, as Depakote can be a migraine preventative, it was keeping the migraines at bay without me knowing it.
Even with these migraines, I wanted to continue to be off the Depakote. I felt...lighter. I had been on doses on Depakote before that were far too high when they measured my levels and I just felt so much better being off of it.
The weight did not come off over night, and I am still about 20 pounds heavier than when I started. Most of the weight was concentrated on my stomach, and that's where I still carry most of my weight now. From my heaviest to this day, I have lost somewhere between 55-65 pounds. It has taken me about 2 years to do this by changing my eating habits and by getting as much exercise I can tolerate. I am finally within a normal BMI, but I still want to lose about 10 more pounds.
My weight is one of the reasons I have struggled with going on prednisone. I have worked so hard to lose this weight that the thought of gaining it back is so scary for me. I know that there are a lot of people out there with lupus, or any other autoimmune disease, who are struggling with their weight. These drugs are not kind to the body - but one day THERE WILL BE A CURE and you can come off it. No matter what you look like on the outside, nothing can change who you are on the inside. I have learned the hard way that you need to accept your body.
There is a quote on the wall of my dorm that says "If you talk to your friends the way you talk to your body, you wouldn't have any friends" (I think that's right...). It is so true. I am still learning this even though I have lost a good portion of my weight. I do not, and may never, look the way I used to. I still have stretch marks covering almost every part of my body. I can still look at myself and hate what I see. But it's time to accept it. That's all there is to do.
Tuesday, April 20, 2010
Anyway, I have calmed down a bit. Matchbox Twenty has also calmed down a bit, but Rob Thomas' solo career has really taken off. While I still have a strong preferance for Matchbox Twenty, Thomas' voice still speaks to me. Especially in the song below. "Her Diamonds" is a song he wrote for his wife who suffers from a "lupus-like" autoimmune disease. Hearing Thomas' amazing voice describe what his wife goes through, and his reaction to it, had me hooked. I'm also glad he told the backstory because this song was very popular and I think helped to spread some awareness about autoimmune diseases.
Enjoy the song and the video!
Sunday, April 18, 2010
My case study is examining portrayals of mental illness in females in the movies Prozac Nation and Girl, Interrupted. It's been A LOT of work, and I cannot wait until it's done. I have learned that, while I do not like research papers, I like primary research even less. Unfortunately, that's the stuff school is made out of. I am sure I would like it a lot more if I wasn't so stressed. It is a topic I am very interested in and ties in well with both of my majors.
So that's it for now. My lupus is still giving me trouble, but I hope to last the rest of the semester without too much trouble. And it helps that tomorrow we have no classes because of Patriot's Day. I worked both today and yesterday and I could really use the break.
Hope everyone has a good week!
Thursday, April 15, 2010
Luckily I am feeling a lot better. The CellCept and Mobic are starting to take effect. I am very thankful for this because I was pretty miserable. I am pretty stressed about a lot of things right now and I am so happy I do not have to worry about a bad lupus flare right now. Of course, though, I know I need to take it easy. Being on these meds and feeling better does not give me a free pass to do whatever I want.
I always have mixed feeling when I have positive test results. On the one hand, its scary to know your body is doing things you can't control. On the other hand, I feel better about the decisions I make to take these powerful, serious drugs.
Anyway, I still have so much to do. It is a long weekend, but unfortunately, I am working both Saturday and Sunday. My goal is to rest on Monday.
Monday, April 12, 2010
I have been reading other blogs recently and a lot of them are talking about taking time out for yourself and relaxing. I can't seem to do that. Money is a serious issue and I can't just stop working. And the semester is winding down, so I can't ask for extensions without getting more stressed out later. I almost did not go to work today, but then I thought about my paycheck and went anyway. One of these days I really will relax.
Sunday, April 4, 2010
Anyway, heading back to school today after a delicious Easter dinner with my family. I'm sad to be going back, but I know I have a lot of work to do. I am really glad I didn't go to work today as I am just starting to feel better and working my shift would have probably set me back another week.
Has anyone seen the documentary Sicko by Michael Moore? I watched it last night and finished it this morning. I recommend it. It has me thinking a lot. Maybe I will write a post about it later.
Hope everyone has a great start to their week!
Saturday, April 3, 2010
I am not working tomorrow because I am pretty sure I would not make it. I am so happy to be spending Easter with my family. I have been so miserable lately and I think the best medicine so far has been being home with my dad and the rest of my family.
I am also completely swamped with work. I have never had this much to do before! Maybe I will post my list, but right now it's too overwhelming. I worked on some today and noe I am about to get into bed with a movie.
Happy Easter/Passover/anything else you might celebrate!
Wednesday, March 31, 2010
This is so frustrating. Everything I do hurts and I have all but lost my appetite. That is so unsual for me. I had a bagel for breakfast and I got Indian food for lunch. I at maybe half of it at best. I ate the pieces of chicken, some rice, some lentils and a little piece of naan. I just ate dinner which was a tiny bit of chilli and rice I made Monday. I did have two cookies at work because they had been handed out for free where I was eating lunch and I decided to have them there. That's it for the day. I consider myself a hearty eater so that is really weird.
Also, I have blood in my urine. I don't think this is from bleeding because it has increased over the past few weeks, which my bleeding has not. I really hope my kidneys are doing OK and that they continue to. My doctor said the results are "borderline" so a visit to the kidney doctor might be in order.
I am not on prednisone. I really want to avoid it.
That's all for now. I guess I will decide whether I am going home tomorrow and if I need to see my rheumatologist.
Tuesday, March 30, 2010
I am thinking of applying for a third job. It is pretty simple, answering calls from home for paid advertisements and the like. It is not an extraordinary amount of money, but it would help of course.
Anyway, I have so much work to get done. I have an annotated bibliography due tomorrow for Writing as Communication so I should get back to that.
Sunday, March 28, 2010
Well, health care reform has happened, and I am thrilled. The preexisting conditions clause does not come into effect until 2014, but it gives me hope for the future.
Tomorrow I pick my classes for the fall. I will be taking my first ever 8am class and I will have no class on Friday. I'm worried about 8am, but it is only two days a week, so I think I will be OK. Of course I will be working when I don't have class. I also registered for two online summer classes.
That's all for now. I worked my 8 hour shift today and it has taken a bigger toll on me than usual. I came to my apartment and slept for a while, but I have a lot of work to get done. So I should get started on that.
I hope everyone has a good week!
Tuesday, March 23, 2010
I hate feeling like a burden to the doctors but its getting real tough. It hurts to sit in a chair too long, it hurts to stand too long and it hurts to put my feet back on the ground after I have been laying down.
My shoulders and wrists have been bothering me as well, but not as much. My wrist has gotten a lot better and I think is nearly back to full strength. But it still aches in a very lupus-like way.
School is going well. I did well on my communication midterm which I was nervous about and I did excellently on the paper for that class.
That's all for now!
Thursday, March 18, 2010
On Monday I met with the endometriosis specialist about my bleeding and treatment. He took me off the Lupron injections because they have given me osteopenia, which is a precursor to osteoporosis. He said it should resolve after I stop and I hope he is right. He put me on Aygestin, which I was already on, but at a dose 3 times higher. He said that often the anesthesia during surgery can mess up the hormones and cause bleeding. I am still bleeding, so hopefully as I taper up the Aygestin dose that will stop.
My wrist is doing a lot better though it is still a little weak. I think that it will get better in time.
The weather has been phenomenal the past couple days. I was worried I would not have nice weather on my break because it started out with a terrible 3 day rain storm. I think we are still under a state of emergency because of all the flooding it caused. Luckily my area was not hit that hard. We had some minor flooding of the roads but that was it.
Wednesday, March 17, 2010
I have been feeling so-so recently. My fingers are swelling intermittently and my other joints are aching. But I cannot complain too much. I'm really happy to be home.
Thursday, March 11, 2010
I got my blood tests today from a couple weeks ago after I reduced the Imuran. They are pretty unremarkable. My complement levels are still normal, but they did drop off a lot. Hopefully that won't become an issue. My CBC was a lot better than it has been in a while, which was a nice surprise.
Spring break is tomorrow and my dreaded comm midterm is over!! I have a Spanish homework due tomorrow and also a small quiz. I have my "pitch" for my case study and I still really don't know what I am doing. My teacher is a TA and she is not very good at explaining stuff. I'm totally lost. I know I want to do something on the show Boy Meets World because I can quote almost every episode word for word. But I'm not sure what I want to do on that show, and I am not sure what I am supposed to do. I messaged a friend in the class who has already had her pitch. Hopefully she will get back to me and help me out.
I want to leave school around 12:30 in the afternoon so that I can get home before rush hour. Hopefully I manage to stick to that timeline!