Sunday, July 26, 2009

Today

I was driving in the car with some friends today when I saw a sign for the Lupus Foundation of America. I pointed it out to my friend in the car who knows I have lupus and she said she had been hearing ads on the radio. I have not heard these, but it makes me really happy that lupus is now getting recognition.

3 comments:

LFA said...

Hey there ... my name is Wick Davis and I'm with the Lupus Foundation of America. I came across your blog and wanted to say hi. I'm in the process of reaching out to other lupus bloggers. I was wondering if you'd be interested in exchanging links to one another's blog. You can read the LFA blog here http://lfa-inc.blogspot.com. I have already added a link to your blog on the LFA blog, in the section called "Lupus Blogs We Read." I would love to talk more with you. You can reach me at davis@lupus.org. I hope to hear from you. best, Wick

stef said...

Hey there -

I was diagnosed w lupus when I was 14 by mere coincidence. My sister was just entering college and SHE was diagnosed at that time so they figured "well, we better test the sister, too" and lo and behold....

It wasn't until I actually reached college that I got my first flareup. This is going to be a VERY trying time for you. Your friends will be drinking and partying, and "I'm sorry guys, my ribs really hurt" doesn't really compute as a valid argument for them. I'm 24 now and I didn't really understand how to take care of my body until about 6 months ago.

There are 3 things you really need to know about lupus in college:
1) You are NOT Superman. Yes, that extra shot WILL actually hurt you tomorrow. That all-nighter you "need to do" WILL cost you for the next month.
2) Your emotions are DIRECTLY connected to your health. Be selfish. That guy that's giving you the run-around? Just say "buh bye" because he's probably not worth your sanity and DEFINITELY not worth your health.
3) Have someone you can talk to that actually knows what you're going through. I had my sister and I don't really know what I would've done without her. You can always shoot me a question or a bitchfest if you'd like :-)

Best of luck and thanks for the blog!

stef

LFA said...

Can you pass this along via your blog, and to all your contacts?

Lupus Foundation of America Needs Your Help -- Urge Your Senators to Cosponsor S. 1630, the Affordable Access to Prescription Medications Act

Go to http://capwiz.com/lfa/home/

Click on the link "Urge Your Senators to Cosponsor S. 1630, the Affordable Access to Prescription Medications Act," enter your zip code in the box called “Call Now” and click on the “go” button. You’ll then be presented with the contact information for your senators, as well as get talking points for what to say when you call.

Please ask your family, friends and coworkers to call on your behalf as well.