Well That's That

I finally got my blood test results from a couple weeks ago (after way too much time trying to convince the lab to give them to me, even though it said "to patient" on the order form and I have never had a problem before. They are my labs, why can't I have them?). I was feeling like complete crap a few weeks ago. Most of my results were good except for the highest ANA I have ever had. Well, it was a flare.

Luckily I am feeling a lot better. The CellCept and Mobic are starting to take effect. I am very thankful for this because I was pretty miserable. I am pretty stressed about a lot of things right now and I am so happy I do not have to worry about a bad lupus flare right now. Of course, though, I know I need to take it easy. Being on these meds and feeling better does not give me a free pass to do whatever I want.

I always have mixed feeling when I have positive test results. On the one hand, its scary to know your body is doing things you can't control. On the other hand, I feel better about the decisions I make to take these powerful, serious drugs.

Anyway, I still have so much to do. It is a long weekend, but unfortunately, I am working both Saturday and Sunday. My goal is to rest on Monday.

Still Not 100%

I don't really know what hit me, but the past couple of days I have not been feeling well at all. No (high) fever, so I know it was not the flu. I tend to run mild temperatures 99.0-100.0 and mine these past couple days never got out of that range. I got these mouth sores and then all day yesterday and this morning I had a horrible, horrible migraine with accompanying nausea. I was miserable and it seemed as though my migraine meds were not working. I took it again around 5:40 this morning and that seemed to do the trick. I went to all my classes today and participated in a research experiment. By noon the headache was gone, so I think the worst was over. Now its just this lingering slight stomach ache and mouth sores which are persisting. I think it is only one or two left now though. I also think I may have a discoid lesion on the back of my leg. I see my primary care doctor on Friday and my rheumatologist next week. Hopefully I start to feel better soon.

This does have me very scared that I am flaring. All these symptoms especially the mouth sores running rampant and thi possible discoid lesion have me nervous. Since I am still not feeling 100% im considering not going to class and sleeping in. I have history in the morning and a meeting with my history TA to go over my paper so it would not be horrible if I missed the class. But I may be great tomorrow, so I will see. I hate missing class. But I also can't mess with a flare.

I'm Still New

I haven't quite gotten used to lupus. I'm unsure about what to do in situations like the one I am in now. My joints ACHE, my chest is hurting and I hate anything that threatens to remove me from my bed. My rheumatologist was not in today and the nurse who called me back told me she had no idea what to do for me. Everything I see online tells me how to prevent a lupus flare, but not so much how to treat one once it has already started.

I guess this all means I need to be more proactive when I see my doctors. I need to stop being intimidated and I need to stop feeling like I am wasting their time with my questions. All it does land me in situations like now, a Friday night in pain with limited options on how to treat it.

I take Imuran and Relafen for my lupus, and I often supplement the Relafen with Tylenol. Hopefully, this combination will work its magic this weekend.