Too Much

Today was a pretty easy day. I only had one class in the morning and then I went to work in afternoon. Unfortunately, I had to carry a couple heavy boxes back and forth from my office to the Concert Hall and my wrist has rebelled against me ever since. I noticed while holding the box that I could not grip it and my hand kept slipping. I thought that was weird but didn't think about it too much until I tried to open the door to the building where the Concert Hall is and I couldn't grip the handle. When I finally got back to the office I couldn't even take the cap off a pen. It feels incredibly weak. It has gotten better but I still can't make a fist or grip things tightly. I don't know if I hurt it carrying the boxes or what. I was going to go over my aunt's house today but I only managed to drive down the street until I realized I shouldn't continue because I could not properly grip the steering wheel. Luckily I see my rheumatologist tomorrow and hopefully I can drive there in the morning.

I only have one midterm and it is tomorrow for my New Media class. It is full of concepts that I have no familiarity with so I am nervous. But after that I only have a Spanish homework, quiz and a "pitch" for my communication case study and I am on Spring break. I am looking forward to noon on Friday so much.

Doing Better

I'm doing a lot better than yesterday. My stomach feels better and I only have a mild headache, not a migraine. Today was pretty unventful. I only had 2 classes and got to go back to my apartment for lunch. Then I went to work and now I am back in my apartment. I have a paper due tomorrow and a meeting tonight. So I will be busy for the rest of the evening.

I can't wait until Spring Break starts on Friday. I don't want to go into work on that day, but I need the money. I guess I will decide by Wednesday so I can let my boss know. I already asked my dad to buy a cornish hen so I can have my favorite dinner. I can't seem to find cornish hens out here.

Not Feeling So Great

I was up last night with a pretty bad stomach ache and migraine. I had to work my 8 hour shift today and my joints are pretty angry about that. And my stomach ache and migraine are still there. I don't know why my stomach is as bad as it is. I made a delicious dinner last night, pasta with chicken and broccoli, and I don't think that it made me sick, but the thought of eating the leftovers right now is totally unappealing. I just put some eggs to boil and I am going to make some toast. I had toast this morning also. I tried a couple slices of pizza this afternoon, but I was feeling OK then. I also came pretty close to passing out at work. I had to keep focused on the idea that passing out would be totally inconvenient and the feeling passed. I knew if I didn't focus on just one thing I would be out. So I'm not sure what is going on. I think I probably had just been on my feet too long.

I always know something if wrong when I do not want to eat anything.

My thermometer is broken I think so I don't know if I have a fever. But my pulse often skyrockets when I have a significant fever and it is pretty normal right now.I see my rheumatologist on Thursday, so of course if something is still wrong I will tell her about it then. We need to talk about my treatment going forward as I'm not totally satisfied with it.

Spring break is next week! I am going home on Friday. It will be nice to relax at home. I have plenty of work to get done in the meantime though, so I am going to eat my "dinner" and get started on it.

Frustrated

It's been a frustrating and exhausting past few days in regards to my health. I am bleeding and cramping intermittently, and no one seems willing to do anything. I missed two classes (well, really one, but I was so mad by the time the second one came around I sat it out) because I was being shuffled back and forth between doctors at the health center. Ultimately, nothing got done. So I called my doctor at home and nothing is going to be done until I see him on March 15. What got me the most upset yesterday was the doctor treating me like I was making a big deal out of nothing and saying something along the lines of "while this is a nuisance, it is not an emergency". I never made it out to be an emergency. I called and made an appointment. I even several days for the appointment. It is, however, completely abnormal. I should not be bleeding at all, especially for such long periods of time.

I was really mad yesterday and my hair is still falling out from the Imuran. My fingers have begun to swell and my joints were very, very painful today. I see my rheumatologist on March 11 and she said we would discuss my options then. Hopefully something can be done because I am really sick of this.

First Day at My New Job

I worked for the first time at my new job today. I got into the swing of things pretty quickly, so that was nice. The only thing is that I spent 8 hours, pretty much straight, on my feet. They hurt a lot now. I'm laying in bed and have very little intention of leaving it right now.

I have two oral tests tomorrow, one is Spanish and one in psychology. My partner for Spanish and I are working out our script via email. I am so happy she agreed to this as I really don't think I could get out to the library or any other place tonight. It hurts to even sit in my chair.

I am concerned about feeling this was as this is something I have to go every week. Next week I will be trained to work the cash register so hopefully I can work on that during my shifts so I can sit down.

I get my blood test results soon and I also see the doctor on Tuesday for this continued bleeding. Hopefully I can sort everything out.

It Was Nice While It Lasted...

Started bleeding again last night and today it's pretty intense. I called the doctor, but the doctor I saw for this last time doesn't have any available appoinments until March 23 (!!) so I am seeing another doctor. The next available open appointment in on Tuesday, but that makes me a little nervous too. I have to go get my blood tests done so I might see if I can stop in and talk with my rheumatologist. Since I started the lower dose of Imuran, I don't know if it is connected and they did tell me to call with any problems.

It was a nice break. This is really annoying as it should not be happening at all. And I could definitely go without the cramps. But I am on hold at the rheumie's office.

It is snowing again today but no snow day. The weather has been pretty ugly the last few days. We had the snowstorm on Wednesday, we had an intense rain and wind storm yesterday and snow again today. I am looking forward to better weather as I am tired of the current weather.

I also had two tests today and I am really tired. I set up my payroll at the new job this morning, so everything is all set for that. I just need to show up bright and early Sunday morning.

I hope everything goes smoothly with that and I do not get too tired or too achy from being on my feet all day. The doctor is calling me back in a few minutes, so hopefully I will have some answers as to what is going on there.

Making Myself Crazy

We had another snow day today (but this time with a lot of snow...) so I have had a lot of time to sit around and do some research. I have been worried about my Imuran for a while, most specifically the increased risk of cancer. I have rare blood cancers on both sides of my family, so I think about that anyway. I have reduced my Imuran dose to 200 mg because of hair loss, but I understand that it still a pretty high dose. I am really scared about this medicine, and in general all the medicine to treat lupus.

I have been exhausted today. I slept until about 8:30 when I found out that school was cancelled for the day. I couldn't get back to sleep so I got about 7.5 hours of sleep for the night. Not great, but not bad either. I took a 2.5 hour nap in the middle of the day, and I am now exhausted. Not fun. I also have been achy today. It is probably too soon for the reduced dose of Imuran to be having an impact, but of course I am wondering what will happen if my symptoms do get worse. Will I increase the Imuran and risk losing more hair? Or will I try a new treatment and have to adjust to new side effects? I've been sitting around thinking about this all day and it's making me a little crazy.

It's already almost 10 pm, so I think I might just make a nice cup of hot apple cider, take a Tylenol PM for my joints and call it a night.